Avtor/Urednik		Dobnik, Mojca; Lorber, Mateja; Pahor, Artur
Naslov		Vpliv bioloških zdravil na kakovost življenja bolnikov z revmatološkim obolenjem
Prevedeni naslov		#The #impact of biologics on the quality of life of people affected by rheumatic diseases
Tip		članek
Vol. in št.		Letnik 47, št. 2
Leto izdaje		2013
Obseg		str. 177-183
ISSN		1318-2951 - Obzornik Zdravstvene Nege
Jezik		slv
Abstrakt		Uvod: Veliko ljudi, ki obolevajo za revmatičnimi boleznimi, ima pogoste in hude bolečine, zato je zelo pomembno učinkovito in hitro obvladovanje le-teh. Namen raziskave je bil ugotoviti, ali kronična bolečina vpliva na izvajanje vsakodnevnih aktivnosti in kakovost življenja bolnikov z revmatološkim obolenjem. Metode: Raziskava je temeljila na kvantitativni metodologiji. V raziskavi je sodelovalo 30 % naključno izbranih bolnikov (n = 90), ki so bili zdravljeni z biološkimi zdravili na Oddelku za revmatologijo Univerzitetnega kliničnega centra Maribor v letu 2011. Pridobljene samoocene v letu 2011 smo primerjali z samoocenami sodelujočih bolnikov, pridobljenimi že pred začetkom zdravljenja z biološkimi zdravili. Kot raziskovalni instrument je bil uporabljen vprašalnik Promis HAQ, tj. vprašalnik za pridobitev samoocene opravilnih zmožnosti, bolečine in kakovosti življenja bolnikov z revmatološkim obolenjem. Cronbach alfa uporabljenega vprašalnika je bil 0,950. Za obdelavo podatkov je bil uporabljen računalniški program SPSS 20.0. Uporabljena je bila deskriptivna statistika, t-test za ugotavljanje statistično pomembnih razlik med spremenljivkami ter linearna regresijska analiza, s katero smo ugotavljali vpliv neodvisne spremenljivke na proučevano odvisno spremenljivko. Rezultati: Bolniki imajo, kljub sicer pomembnemu izboljšanju po zdravljenju z biološkimi zdravili, največ težav na področju opravljanja gospodinjskih del (x = 2,58, s = 0,810), prehranjevanja (x = 2,34,s = 0,683), gibanja (x =2,189, s = 0,735) in izvajanja osebne higiene (x = 2,20, s = 0,705). Po zdravljenju z biološkimi zdravili se je pri bolnikih stopnja bolečine statistično pomembno zmanjšala (t = 9,177, p < 0,001), izvajanje vsakodnevnih dejavnosti se je izboljšalo (t = 15,148, p < 0,001), prav tako se je izboljšala kakovost življenja (t = 9,339, p < 0,001). Bolečina ima statistično pomemben vpliv (ß = 8,554, p < 0,001) na kakovost življenja bolnikov. Diskusija in zaključek: Kot smo ugotovili, je bolečina prevladujoč dejavnik, ki bolnike z revmatološkim obolenjem omejuje pri izvajanju vsakodnevnih aktivnosti in vpliva na kakovost njihovega življenja. Zaradi tega je poleg zgodnjega odkrivanja revmatičnih bolezni in obvladovanja bolečine zelo pomembno tudi zdravstvenovzgojno delovanje medicinskih sester.Introduction: Intense pain is the most common presenting complaint in rheumatic disease patients, so professional pain management remains one of primary concerns. The aim of the study was to determine the impact of chronic pains on the activities of daily living and the patients' quality of life. Methods: Quantitative research method was used to investigate the research questions. Included in the study were 30 % of randomly selected subjects (n = 90) who were treated with biological drugs at the Department of Rheumatology of the University Clinical Centre (UCC) Maribor in the year 2011. The patients' self-assessment reports compiled in the year 2011 were compared to the reports of the participants prior to their treatment with biologics. The assessment tool Health Assessment Questionnaire Disability Index (PROMIS-HAQ) was used in self-reporting physical function/disability, pain and quality of life in patients with rheumatic diseases and conditions. The baseline internal consistency of the questionnaire measured by Cronbach's alpha was 0.950. The data were processed with the statistical package SPSS 20.0. Descriptive statistics were used to describe the basic features of the data and a t-test was employed to determine statistically significant differences between variables. The impact of the independent (predictor) variable on the studied dependent variable was determined by the linear regression analysis. Results: Despite notable improvement ensuing biological treatment, the patients still have difficulty in performing household activities (x = 2.58, s= 0.810), feeding (x = 2.34, s = 0.683), movement (x =2.189, s = 0.735), and the daily personal hygiene (x = 2.20, s = 0.705). After the treatment, a statistically significant decrease in pain intensity was reported (t = 9.177, p < 0.001), along with improved performance in activities of daily living (t =15.148, p < 0.001) and the quality of life (t = 9.339, p < 0.001). It has been confirmed that pain has a statistically significant influence on the quality of patients' lives (ß = 8.554, p < 0.001). Discussion and conclusion: The study results indicate that debilitating pain conditions in rheumatologic patients commonly hinder and interfere with their daily activities as well as affect the quality of their life. Timely detection of rheumatic diseases and pain management, together with nurses¼ health-education and counseling are therefore of paramount importance to rheumatology patients.
Proste vsebinske oznake		kronična bolečina življenjske aktivnosti izboljšanje aktivnosti chronic pain activities of daily living performance improvement