Avtor/Urednik		Burger, Helena; Marinček, Črt
Naslov		Sindrom post-polio v Sloveniji: rezultati študije 100 ljudi, ki so preboleli otroško paralizo
Prevedeni naslov		Post-polio syndrome in Slovenia: results of a survey of 100 polio survivors
Tip		članek
Vir		Zdrav Vestn
Vol. in št.		Letnik 67, št. 12
Leto izdaje		1998
Obseg		str. 717-20
Jezik		slo
Abstrakt		Background. The purpose of our work was to find out how many persons who in their childhood suffered from poliomyelitis, suffer now from subsequent problems, what these problems are, and how they effect functional ability and life satisfaction of the persons in question. Methods. A questionnaire with a list of subsequent problems typical of post-polio syndrome, problems in walking, using means of public transport, problems in activities of daily living (ADL) (Nottingham Extended Scale), and with an evaluation of life satisfaction (Life Satisfaction Measure), was sent to all persons (207) who at least once in the last five years visited the orthotic clinic at the Institute of Rehabilitation, Republic of Slovenia. We received a hundred questionaires. All persons did not answer all of the questions. Results. Our findings show that a large number of persons who suffred from poliomyelitis, now from subsequent problems, the majority of which involve fatigue, differenty types of pain, decrease in energy and an increased weakness of previously affected muscles. The problems result in difficulties inwalking, using means of public transport, coping with ADL, and they also result in adecrase of life satisfaction. Conclusions. Since subsequent impairments result in additional disabilities and handicaps, and also decrease life satisfaction, they call for a timely identification, examination and treatment in order to prevent their further and unnecessary effect on the quality of life.
Izvleček		Izhodišča. Namen našega dela je bil ugotoviti, koliko ljudi, ki so v otroštvu preboleli otroško paralizo, ima danes nove težave, kakšne so, ter njihov vpliv na funkcionalno stanje in zadovoljnost ljudi z življenjem. Metode. Vsem ljudem (207), ki so v zadnjih petih letih vsaj enkrat obiskali ambulanto za ortotiko na Inštitut RS za rehabilitacijo in v otroštvu preboleli otroško paralizo, smo poslali vprašalnik s seznamom novih težav tipičnih za pst-polio sindrom, težav pri hoji, uporabo prevoznih sredstev, težav pri dnevnih aktivnostih (Nottingham extended scale) ter za oceno zadovoljnosti z življenjem (Life Satisfaction measure). Sto jih je vprašalnik vrnilo. Vsi niso odgovorili na vsa vprašanja. Rezultati. ugotovili smo, da imajo mnogi, ki so v otroštvu preboleli otroško paralizo, danes nove težave, med katerimi prevladujejo utrujenost, različne bolečine, zmanjšana aktivnost in večja oslabelost že prej oslabelih mišic. Posledica so težave pri hoji, uporabi prevoznih sredstev, opravljanju dnevnih aktivnosti, manjša pa je tudi zadovoljnost ljudi z življenjem. Zaključki. Ker nove dodatne okvare vodijo v nove prizadetosti in oviranost ter zmanjšujejo kakovost življenja teh ljudi, jih moramo pravočasno prepoznati in čimprej reševati, tako da Še dodatno in po nepotrebnem ne slabšajo kakovost življenja.
Deskriptorji		POSTPOLIOMYELITIS SYNDROME QUESTIONNAIRES ACTIVITIES OF DAILY LIVING QUALITY OF LIFE