Avtor/Urednik		Steliarova-Foucher, E; Kaatsch, P; Lacour, B; Pompe-Kirn, V; Eser, S; Miranda, A; Danzon, A; Ratiu, A; Parkin, DM
Naslov		Quality, compaability and methods of analysis of data on childhood cancer in Europe (1978-1997)
Tip		članek
Vir		Eur J Cancer
Vol. in št.		Letnik 42, št. 13
Leto izdaje		2006
Obseg		str. 1915-51
Jezik		eng
Abstrakt		In collaboration with 62 population-based cancer registries contriburing to the Automated Childhood Cancer Informarion System (ACCIS), we built a database to study incidence and survival of children and adolescents with cancer in Europe. We describe the methods and evaluate the quality and internal comparability of the database, by geographical region, period of registration, type of registry and other characterisrics. Data on 88,465 childhood and 15,369 adolescent tumours registered during 1978-1997 were available. Geographical differences in incidence are caused partly by differences in definirion of eligible cases. The observed increase in incidence rates cannot be explained by biases due to the selection of datasets for analyses, and only partially by the registration of non-malignant or multiple primary tumours. Part of the observed differences in survival between the regions may be due to variable completeness of follow-up, but most is probably explained by resource availability and organisarion of care. Further standardisation of data and collection of addirional variables are required so that this study may continue to yield valuable results with reliable interpretation.
Deskriptorji		NEOPLASMS DATA COLLECTION REGISTRIES DATA INTERPRETATION, STATISTICAL EUROPE CHILD INCIDENCE