Avtor/Urednik | Badiu, Corin; Bonomi, Marco; Borshchevsky, Ivan; Cools, Martine; Craen, Margarita; Ghervan, Cristina; Hauschild, Michael; Hershkovitz, Eli; Hrabovszky, Erik; Juul, Anders; Avbelj, Magdalena | |
Naslov | Developing and evaluating rare disease educational materials co-created by expert clinicians and patients | |
Tip | članek | |
Vol. in št. | Letnik 12, št. 57 | |
Leto izdaje | 2017 | |
Obseg | str. 1-9 | |
ISSN | 1750-1172 - Orphanet journal of rare diseases | |
Jezik | eng | |
Proste vsebinske oznake | Congenital hypogonadotropic hypogonadism Kallmann syndrome Rare diseases e-health Community based participatory research |