Avtor/Urednik		Marques, Ruben; Belousova, Elena; Perković-Benedik, Mirjana; Carter, Tom D.; Cottin, Vincent; Curatolo, Paolo; Dahlin, Maria; d'Augères, Guillaume B.; de Vries, Petrus J.; Ferreira, Jose C.
Naslov		The TOSCA Registry for tuberous sclerosis-lessons learnt for future registry development in rare and complex diseases
Tip		članek
Vol. in št.		, št. Vol. 10
Leto izdaje		2019
Obseg		str. 1-10
ISSN		1664-2295 - Frontiers in neurology
Jezik		eng
Proste vsebinske oznake		tuberous sclerosis complex childhood TOSCA