Avtor/Urednik		Ravnik, Igor M
Naslov		Trdovratne epilepsije pri otrocih in mladostnikih
Prevedeni naslov		Severe epilepsies in children and adolescents
Tip		članek
Vir		Med Razgl
Vol. in št.		Letnik 37, št. Suppl 4
Leto izdaje		1998
Obseg		str. 141-6
Jezik		slo
Abstrakt		Definitions of severe/difficult to treat/drug-resistant epilepsy and measures proposed to assess them are briefly summarised. The principles of managing patients suffering from severe epilepsies and most frequent pitfalls leading to management failure are reviewed on the basis of literature and own experience. The activities of epilepsy centres abroad and of the Epilepsy comprehensive programme developed during the recent years at the Slovene Centre for Epilepsy (Paediatric and Adolescent) are presented. Physicians in primary health care are urged to take a mroe active role in providing appropriate referrals and support to the patients with severe epilepsy and their families. Global Action against Epilepsy (WHO, ILAE 1997-2000) may be seen as a helpful framework to increase understanding for people with epilepsy and to exert public pressure on health authorities so far paradoxically not offering support to increase the levelof service for the most severe patients with epilepsy.
Izvleček		Predstavljene sodefinicije hude/trdovratne/težkoozdravljive/farmakorezistentne epilepsije ter načela za njihovo ocenjevanje. Po literaturi in iz lastnih izkušenj so razložena načela obravnave bolnikov s trdovratnimi epilepsijami innajpogostejše težave in pasti, s katerimi se srečujemo pri tem delu, in je zaradi njih zdravljenje manj uspešno. Opisano je delo Centra za epilepsije, ki je v zadnjih letih skupaj z drugimi nevrološkimi strokami Kliničnega centra v Ljubljani razvil model celostne obravnave (diagnostike, zdravljenja in rehabilitacije) najtežjih bolnikov. Avtor spodbuja zdravnike v osnovnem zdravstvenem varstvu k bolj dejavni skrbi za bolnike z najtežjimi epilepsijami. V okviru Svetovne akcije proti epilepsiji 1997-2000 (SZO in Mednarodna liga proti epilepsiji) najbi tudi v Sloveniji dosegli večje razumevanje za potrebe ljudi z epilepsijo in z javnimi pritiski na odgovorne izboljšali raven celostnega varstva najtežjih bolnikov.
Deskriptorji		EPILEPSY PATIENT CARE TEAM CHILD ADOLESCENCE