Author/Editor		Lokar, Katarina
Title		Zagovorništvo v zdravstveni negi s poudarkom na paliativni oskrbi pacientov z rakom
Translated title		Advocacy in nursing care in the light of palliative care of cancer patients
Type		članek
Source		Obz Zdrav Nege
Vol. and No.		Letnik 39, št. 4
Publication year		2005
Volume		str. 255-61
Language		slo
Abstract		In palliative care of cancer patients, the quality of decision taking is of utmost importance. When the patient is presented with invasive treatment methods, he has to choose among treatment benefits, side effects of the treatment and quality of life. Because of all these reasons it is impossible to overlook important and necessary role of the nurse as a patient's advocate. Advocacy is carried out by several professional and voluntary groups working inside or outside the system of health care. The roles of advocates are clearly defined. In comparison with all the other models of advocacy the meaning and model of advocacy in nursing care are not clear, while the characteristic of all models is personal autonomy. Theoreticians, teachers and practitioners of nursing care promote nurse as an "ideal" patient advocate. The reasons for it are the following: advocacy of patients is a traditionul role of a nurse, nurses occupy the best position inside the health team to carry out advocacy, nurses can act as patients' advocates and patients can assume a partner role. However, regardless of the fact that the profession of nursing care traditionally accepts this role, for a nurse to perform the role of a patient's advocate and to pursue this career, public and legal support is required. Until then, advocacy will represent a risky career direction.
Summary		Pri paliativnem zdravljenju bolnikov z rakom je kvaliteta sprejemanja odločitev bistvenega pomena. Ko so pacientu ponujene invazivne oblike zdravljenja, se mora odločati med koristmi zdravljenja, sopojavi zdravljenja in kvaliteto življenja. Ravno zaradi naštetih razlogov je nemogoče prezreti zelo pomembno in potrebno vlogo medicinske sestre kot zagovornice pacientov. Zagovorništvo opravljajo številne profesionalne in prostovoljne skupine, ki delujejo znotraj ali zunaj sistema zdravstvenega varstva. Vsi ti zagovorniki imajo jasno definirano vlogo. V nasprotju z jasno definirano vlogo zagovorništva pri omenjenih skupinah so pomen in modeli zagovorništva v zdravstveni negi nejasni, vsem modelom pa je skupno to, da temeljijo na osebni avtonomiji. Teoretiki, učitelji in praktiki v zdravstveni negi promovirajo medicinsko sestro kot »idealno« zagovornico pacientov. Razlogi so naslednji: zagovorništvo pacientov je tradicionalna vloga za medicinsko sestro, medicinske sestre imajo najboljše mesto znotraj zdravstvenega tima za delovanje v vlogi zagovornika pacientov, medicinske sestre znajo zagovarjati paciente ter medicinske sestre in pacienti so lahko partnerji v zagovorništvu. A čeprav si morda profesija zdravstvene nege to vlogo formalno pripisuje, potrebuje medicinska sestra za delovanje v vlogi zagovornika in za bodoči karierni razvoj te vloge podporo javnosti in zakonodaje. Do takrat pa bo zagovorništvo zanjo predstavljalo tvegano poklicno pot.
Descriptors		ONCOLOGIC NURSING PALLIATIVE CARE PATIENT ADVOCACY