Author/Editor		Sheikh, Aziz; Halani, Laila; Bhopal, Raj; Netuveli, Gopalakrishnan; Partridge, Martyn R; Car, Josip; Griffiths, Chris; Levy, Mark
Title		Facilitating the recruitment of minority ethnic people into research: qualitative case study of South Asians and asthma
Type		članek
Source		PLoS Med
Vol. and No.		Letnik 6, št. 10
Publication year		2009
Volume		str. e1000148
Language		eng
Abstract		Background: There is international interest in enhancing recruitment of minority ethnic people into research, particularly in disease areas with substantial ethnic inequalities. A recent systematic review and meta-analysis found that UK South Asians are at three times increased risk of hospitalisation for asthma when compared to white Europeans. US asthma trials are far more likely to report enrolling minority ethnic people into studies than those conducted in Europe. We investigated approaches to bolster recruitment of South Asians into UK asthma studies through qualitative research with US and UK researchers, and UK community leaders. Methods and findings: Interviews were conducted with 36 researchers (19 UK and 17 US) from diverse disciplinary backgrounds and ten community leaders from a range of ethnic, religious, and linguistic backgrounds, followed by self-completion questionnaires. Interviews were digitally recorded, translated where necessary, and transcribed. The Framework approach was used for analysis. Barriers to ethnic minority participation revolved around five key themes: (i) researchers' own attitudes, which ranged from empathy to antipathy to (in a minority of cases) misgivings about the scientific importance of the question under study; (ii) stereotypes and prejudices about the difficulties in engaging with minority ethnic populations; (iii) the logistical challenges posed by language, cultural differences, and research costs set against the need to demonstrate value for money; (iv) the unique contexts of the two countries; and (v) poorly developed understanding amongst some minority ethnic leaders of what research entails and aims to achieve. (Abstract truncated at 2000 characters)
Descriptors		MINORITY GROUPS PATIENT SELECTION ASTHMA ATTITUDE OF HEALTH PERSONNEL BANGLADESH COMMUNICATION BARRIERS CULTURAL DEPRIVATION GREAT BRITAIN HEALTH POLICY HEALTH SERVICES ACCESSIBILITY INDIA LEADERSHIP PAKISTAN PREJUDICE RESEARCH PERSONNEL UNITED STATES