Author/Editor		Mimić, Alenka; Simonič, Anja; Skela-Savič, Brigita
Title		Razumevanje koncepta umiranja z dostojanstvom pri medicinskih sestrah v paliativni oskrbi
Translated title		'Dying with dignity' - the palliative care nurse's awareness of this concept
Type		članek
Vol. and No.		Letnik 47, št. 4
Publication year		2013
Volume		str. 325-332
ISSN		1318-2951 - Obzornik Zdravstvene Nege
Language		slv
Abstract		Uvod: V zadnjih desetletjih se spoštovanje človekovega dostojanstva pojavlja kot pomembna pravna norma, umiranje z dostojanstvom pa je obenem eden temeljnih ciljev paliativne oskrbe. Malo je raziskano, kako koncept človekovega dostojanstva razumejo medicinske sestre. Metode: Izvedli smo kvalitativno raziskavo, za katero smo podatke pridobili s polstrukturiranimi intervjuji, izvedenimi od julija do septembra 2011. Uporabili smo namenski vzorec - sodelovalo je pet medicinskih sester s srednješolsko, višješolsko in visokošolsko izobrazbo, zaposlenih na področju paliativne oskrbe v Kliniki Golnik in na Onkološkem inštitutu Ljubljana. Podatke smo analizirali s pomočjo interpretativne fenomenološke analize. Rezultati: Najpomembnejši prepoznani dejavniki pri medicinskih sestrah, ki oblikujejo občutek, da ohranjajo dostojanstvo pri pacientih, so znanje, odnos in organizacija dela. Prepoznanih je bilo t. i. pet akterjev, ki sooblikujejo in definirajo predstave o dostojanstvenem umiranju. To so pacient, medicinska sestra, zdravnik in svojci, ki se srečujejo v določenem okolju. Diskusija in zaključek: Za to, da bo vsak pacient z neozdravljivo boleznijo deležen paliativne oskrbe, ki mu bo omogočila umreti z dostojanstvom, je predvsem potrebno zagotoviti pacientom prijazno okolje, organizacijo dela, ki izvajalcem omogoča opravljanje oskrbe, za katero so profesionalno odgovorni, in povečati nivo znanja o paliativni oskrbi tako med strokovno kot laično javnostjo.Introduction: During the last decades, the principle of respect for human dignity has played a crucial role in the emerging global norms relating to bioethics, and dying with dignity has became a goal which palliative care would like to achieve. However, the knowledge about nurses' understanding of the concept of human dignity has thus far not been fully explored into. Methods: The interpretative phenomenological analysis was used as a framework for analysing qualitative research data collected through semi-structured interviews from July to September 2011. The sample consisted of five palliative care nurses employed at the University Clinic of Respiratory and Allergic Diseases Golnik and Institute of Oncology Ljubljana. All the participants possessed either secondary, college or university education. Results: The results of the study identified the nurses' knowledge, attitude and management as the most significant factors in conserving human dignity. Contributing to the creation of the sense of dignity are patients themselves, nurses, physicians, family members and significant others whose paths intersect in specific circumstances. Discussion and conclusion: In order to ensure that all patients with life-limiting illness are treated with care and respect, receive quality palliative end-of-life care and die with dignity, a patient-friendly environment and adequate organization of healthcare provision is necessary. It is also essential to emphasize the importance of holistic care and to raise the awareness of palliative care among healthcare professionals and the general public.
Keywords		paliativna oskrba bioetika umiranje dostojanstvo odnos palliative care bioethics dying with dignity human dignity attitude