Author/Editor		Osolnik, Sabina; Majdič, Neža; Groleger, Katja
Title		Možnost uporabe vprašalnika za oceno funkcijskih sposobnosti pri načrtovanju aktivnosti zdravstvene nege otrok s cerebralno paralizo
Translated title		Potential usability of paediatric evaluation of disability inventory in activities of health care planning
Type		članek
Vol. and No.		Letnik 13, št. 2
Publication year		2014
Volume		str. 23-28
ISSN		1580-9315 - Rehabilitacija
Language		slv
Abstract		Izhodišča: Za otroka s cerebralno paralizo so značilne zmanjšane zmožnosti vzdrževanja drže in gibanja, zaznavanja, hranjenja, govora, vedenja in spoznavnih funkcij ter epilepsija. Poleg gibanja nas pri otroku s cerebralno paralizo zanimajo spodobnosti funkcioniranja na področju skrbi zase in socialnih veščin. Oceno teh veščin nam omogoča vprašalnik PEDI (angl. Paediatric evaluation of disability inventory). Zanimalo nas je, ali bi medicinske sestre za načrtovanje nege lahko uporabile rezultate iz vprašalnika PEDI. Predvideli smo tudi, da bodo imeli otroci z več težavami na področju gibanja več težav tudi pri ostalih vsakodnevnih dejavnostih. Metode: Pregledali smo dokumentacijo 100 otrok s cerebralno paralizo, ki so bili v obravnavo vključeni na otroškem oddelku Univerzitetnega rehabilitacijskega inštituta RS - Soča, in zbrali podatke o starosti, spolu, stopnji grobih gibalnih funkcij (GMFCS, angl. Gross Motor Function Classification System) in rezultatih ocene z vprašalnikom PEDI. Analizirali smo povezanost med stopnjo GMFCS in rezultati posameznih podlestvic vprašalnika PEDI. Primerjali smo vsebino vprašalnika PEDI s seznamom temeljnih življenjskih veščin, ki jih medicinske sestre uporabljajo za načrtovanje svojega dela. Rezultati: V študijo smo vključili 100 otrok s CP, 53 dečkov in 47 deklic, s povprečno starostjo 3,3 let (SD 1,32) ob prvem sprejemu. Iz dostopne dokumentacije smo zbrali rezultate vprašalnika PEDI za 62 otrok. Analiza je pokazala, da so rezultati vseh področij, ki so vključena v vprašalnik PEDI, statistično značilno povezani s stopnjo GMFCS (p<0,01). Primerjava seznama temeljnih življenjskih veščin in veščin v vprašalniku PEDI je pokazala, da je prekrivanje popolno. Zaključek: Dosežki otrok s cerebralno paralizo na posamezni podlestvici vprašalnika PEDI so značilno povezani s stopnjo GMFCS. Vprašalnik PEDI bi lahko postal sestavni del dokumentacije medicinskih sester, saj vključuje vse temeljne življenjske veščine, ki jih medicinske sestre spremljajo v procesu načrtovanja in izvajanja zdravstvene nege.Background: A child with cerebral palsy (CP) is characterized by a reduced ability to maintain posture, to move, to process sensory information and quite frequently to have feeding, speech, behaviour and cognitive problems. Besides the gross motor function professionals are interested in functioning in different domains, such as selfcare and social skills. The Paediatric evaluation of disability inventory (PEDI) is valid instrument for evaluation of these domains in all chronically ill children. We wanted to know whether nurses could use PEDI for care planning. We also anticipated that the children in higher gross motor function classification system (GMFCS) levels would show more difficulties in self-care and social skills domains of PEDI, which could also be used as predictor for nursing care needed at the department. Methods: We reviewed the records of 100 children with CP, who were referred to the children's department of the University Rehabilitation Institute of Republic Slovenia. We collected data on age, gender, GMFCS level and results of PEDI and analysed the correlation between the level of GMFCS and the results of the individual subscales of the PEDI. Further we compared the content of the PEDI questionnaire with a list of the basic life skills that nurses use to plan their work. Results: One hundred children with CP were included in the study, 53 boys and 47 girls with an average age of 3.3 years (SD 1.32) at first admission. From the available documentation we have gathered the PEDI results for 62 children. The analysis showed that the results of all PEDI subscales were significantly in correlation with the GMFCS level (p <0.01). Comparison of the list of basic life skills, which is used by nurses, and skills in the PEDI showed that they overlap perfectly. Conclusion: The achievements of children with cerebral palsy on each subscale PEDI were significantly associated with the level of GMFCS. The questionnaire PEDI could become an integral part of the documentation of nurses since it includes all the basic life skills needed to be evaluated in the process of planning and implementation of nursing care.
Descriptors		Cerebral Palsy Child Family Rehabilitation Nursing Care
Keywords		assessment PEDI cerebralna paraliza otrok družina rehabilitacija zdravstvena nega ocenjevanje