Author/Editor		Klanjšek, Petra; Fekonja, Zvonka
Title		Elements of pediatric palliative care
Translated title		Elementi pediatrične paliativne oskrbe
Type		članek
Source		In: Zbornik predavanj Maribor : Fakulteta za zdravstvene vede
Publication year		2016
Volume		str. 63-72
Language		slv
Abstract		Uvod Paliativna oskrba otrok mora zajemati neizpolnjene zahteve in potrebe umirajočih otrok ter njihovih staršev. V prispevku so opisani ključni elementi optimalne pediatrične paliativne oskrbe s perspektive otrok in mladostnikov ter njihovih staršev. Metode: Izveden je bil sistematični pregled literature v naslednjih podatkovnih bazah: PubMed, MEDLINE, CINAHL in ScienceDirect. Pregled literature je potekal v marcu 2016. V pregled literature so bili vključeni članki, ki so se nanašali na temo paliativne oskrbe otrok, starih od 0 do 19 let ob koncu življenja. V končno analizo je bilo vključenih 7 člankov, ki so ustrezali vključitvenim kriterijem. Rezultati Pri pregledu literature so bili ugotovljeni naslednji pomembni elementi, ki vplivajo na kakovostno pediatrično paliativno oskrbo: mesto oskrbe, psihosocialna pomoč, nadomestna oskrba, podporna oskrba in podpora družini. Diskusija in zaključek Pediatrična paliativna oskrba mora predstavljati aktivno oskrbo otrokovih fizičnih težav ter duševno, socialno in duhovno podporo, ki vključuje tudi podporo družini pred in po smrti. Osnova za izvajanje kakovostne pediatrične paliativne oskrbe mora temeljiti na zgoraj omenjenih elementih. Prav tako je svetovano redno izobraževanje medicinskih sester za zagotavljanje visoko kakovostne pediatrične paliativne oskrbe.Introduction: Palliative care of children should address the requirements and needs of dying children and their parents. In this paper the key elements of optimal pediatric palliative care from the perspective of children, adolescents and their parents were described. Methods A systematic review of the literature was conducted in the following databases: PubMed, MEDLINE, CINAHL and ScienceDirect. Review of the literature was conducted in March 2016. In the literature review were included articles that are related to the topic of palliative care for children aged 0 to 19 years at the end of life. The final analysis included seven articles which met the inclusion criteria. Results In the literature review, the following significant items that affect the quality of pediatric palliative care were found: place of care, psycho-social support, respite care, supportive care and family support. Discussion and conclusions Paediatric palliative care must represent the active care of children's physical problems and mental, social and spiritual support, including support for families before and after death of their child. The basis for the implementation of quality pediatric palliative care should be based on the above elements. It is also advised regular training of nurses for providing high quality pediatric palliative care.
Keywords		otroci oskrba umirajočega pediatrija pregled literature children care of the dying pediatric literature review