| Author/Editor | Badiu, Corin; Bonomi, Marco; Borshchevsky, Ivan; Cools, Martine; Craen, Margarita; Ghervan, Cristina; Hauschild, Michael; Hershkovitz, Eli; Hrabovszky, Erik; Juul, Anders; Avbelj, Magdalena | |
| Title | Developing and evaluating rare disease educational materials co-created by expert clinicians and patients | |
| Type | članek | |
| Vol. and No. | Letnik 12, št. 57 | |
| Publication year | 2017 | |
| Volume | str. 1-9 | |
| ISSN | 1750-1172 - Orphanet journal of rare diseases | |
| Language | eng | |
| Keywords | Congenital hypogonadotropic hypogonadism Kallmann syndrome Rare diseases e-health Community based participatory research |