Author/Editor | Stanimirović, Dalibor; Murko, Eva; Battelino, Tadej; Grošelj, Urh | |
Title | Development of a pilot rare disease registry | |
Type | članek | |
Vol. and No. | Letnik 14, št. 172 | |
Publication year | 2019 | |
Volume | str. 1-13 | |
ISSN | 1750-1172 - Orphanet journal of rare diseases | |
Language | eng | |
Keywords | redke bolezni registri Slovenija rare diseases pilot rare disease registry, national rare disease registry rare disease ecosystem case studies focus groups Slovenia |