| Author/Editor | Lajlar, Nika; Moharić, Metka; Vidmar, Gaj | |
| Title | Psihometrične lastnosti slovenskega prevoda vprašalnika o kakovosti življenja pri bolnikih z genetsko obliko živčno-mišičnih bolezni | |
| Translated title | Psychometric properties of the slovenian version of quality of life questionnaire in patients with a genetic form of neuromuscular diseases | |
| Type | članek | |
| Vol. and No. | Letnik 20, št. 2 | |
| Publication year | 2021 | |
| Volume | str. 4-12 | |
| ISSN | 1580-9315 - Rehabilitacija | |
| Language | slv | |
| Abstract | Izhodišča: Ocenjevanje kakovosti življenja postaja pomemben del obravnave bolnikov s kroničnimi obolenji. V raziskavi smo ocenili psihometrične lastnosti slovenske različice Vprašalnika o kakovosti življenja bolnikov z genetsko obliko živčno-mišičnih bolezni. Metode: V slovenščino smo prevedli vprašalnik ter preverili njegovo zanesljivost in veljavnost. Funkcijsko stanje bolnikov smo ocenili z Lestvico funkcijske neodvisnosti, kakovost življenja smo ocenili s Kratkim vprašalnikom o zdravju (SF-36v2) ter z Vprašalnikom o kakovosti življenja bolnikov z genetsko obliko živčno-mišičnih bolezni. Rezultati: V raziskavo smo vključili 98 bolnikov. Cronbachov koeficient alfa je za vse tri podlestvice Vprašalnika o kakovosti življenja bolnikov z genetsko obliko živčno-mišičnih bolezni znašal vsaj 0,85. Vse povezanosti kot mere sočasne veljavnosti so bile srednje visoke do visoke. Zaključek: Slovenska različica Vprašalnika o kakovosti življenja bolnikov z genetsko obliko živčno-mišičnih bolezni se je izkazala za zanesljivo in veljavno.Background: Assessing quality of life is becoming an important part of the treatment of patients with chronic diseases. The aim of our research was to determine the psychometric characteristics of the Slovenian version of The Quality of Life in Genetic Neuromuscular Disease Questionnaire. Methods: We translated the questionnaire and assessed reliability and validity of the Slovenian version. The functional status of patients was assessed with the Functional Independence Measure, their quality of life was assessed with the generic 36-Item Short Form Survey (SF-36) and with The Quality of Life in Genetic Neuromuscular Disease Questionnaire. Results: Ninety-eight participants were included in the study. Cronbach’s alpha coefficient was s0.85 for all three scales. All correlations that assessed concurrent validity were medium to high. Conclusion: The Slovenian version of The Quality of Life in Genetic Neuromuscular Disease Questionnaire is sufficiently reliable and valid. | |
| Descriptors | Neuromuscular Diseases rehabilitation | |
| Keywords | zdravje kakovost življenja živčno-mišične bolezni zanesljivost veljavnost health quality of life neuro-muscular diseases reliability validity |