Author/Editor		Lobnik-Krunič, Brigita
Title		Vloga nevropediatra v Mariboru
Translated title		Neuropediatrician's role in Maribor
Type		članek
Source		Med Razgl
Vol. and No.		Letnik 37, št. Suppl 4
Publication year		1998
Volume		str. 473-7
Language		slo
Abstract		The first steps of neuropediatric activity in Maribor began more than 30 years ago, in a period when epilepsy was still a taboo subject. This subspecialisation was developed as a part of the pediatric clinic, but due to a deficit of specialists and financial difficulties this process was relatively slow. In the last decade working conditions have improved and the pedoneurological department has been well equipped. However, we are unlikely to obtain the necessary number of specialists for another two or three years. Pedoneurological activities in Maribor include hospital and subspecialists outpatient activities with EEG support, in close cooperation with institutions providing pediatric primary care in the Maribor region. Statistics indicate that 6-10% of all in-patient children have one of the CNS diseases, and most of these are convulsive diseases. Better working conditions and the development of EEG-diagnostic and pharmacological therapy have led to an increase in the percentage of cures among patients with convulsive symptoms. However, there is still a large numher of patients with malignant forms of epilepsy or epileptic syndrome, neuro-muscular diseases, heredodegenerative diseases and expansive process who have to be sent to the Pediatric Neurological Clinic in Ljubljana. In addition to the role of a doctor, the neuropediatrician has the task of helping these patients successfully return to society, and to educate society at large about the specifics of children with neurological diseases, in order to enable them to lead fulfilling lives without prejudices with regard to their abilities. Unfortunately, restrictions in the amount of time we are able to spend with individual patients make us enable to provide complete and professional treatment. (Abstract truncated at 2000 characters).
Summary		Prvi zametki nevropediatrične dejavnosti v mariborski regiji so nastali pred več kot tridesetimi leti, v obdobju, ko je epilepsija pomenila še tabu. Razvoj te subspecialistične dejavnosti je potekal po vzorcu pedonevrološke dejavnosti Pediatrične klinike v Ljubljani, vendar zaradi kadrovskega pomanjkanja in stalnih denarnih težav upočasnjeno. V zadnjem desetletju so se izboljšali delovni pogoji in opremljenost pedonevrološkega odseka, na kadrovskem področju pa je žal za pričakovati napredek šele v dveh ali treh letih. Pedonevrološka dejavnost obsega bolnišnično, subspecialistično ambulantno dejavnost in elektroencefalografsko ter nevropsihološko aktivnost v tesnem sodelovanju z odgovarjajočimi izvenbolnišničnimi ustanovami. Statistični pokazatelji zadnjih deset let kažejo kontinuirano obolevnost, 6-10 % vseh bolnikov, sprejetih v bolnišnico, se zdravi zaradi obolenj osrednjega živčev- ja. Boljše prepoznavanje kliničnih konvulzivnih sindromov, razvoj elektroencefalogramske diagnostike ter napredek v farmakologiji je pripeljal do večjega odstotka ozdravitve bolnikov s konvulzivno simptomatiko. Vendar je še kar lepo število bolnikov z malignimi oblikami epilepsij, z epileptičnimi sindromi, živčno-mišičnimi boleznimi, heredodegenerativnimi boleznimi in tudi otroci z ekspanzivnimi procesi osrednjega živčevja, potrebno premestiti v nadaljno diagnostično obdelavo na Pediatrično nevrološko kliniko v Ljubljani. Ob celostni obravnavi nevrološko obolelega otroka, ob terapevtskem vodenju in skrbi za ustrezno vključevanje teh otrok v ožjo in širšo družbeno skupnost je naloga nevropediatra tudi osveščanje širše družbene skupnosti o posebnostih nevrološko obolelih otrok in jim tako omogočiti čim kakovostnejši način življenja brez predsodkov, v okviru njihovih sposobnosti. Žal dosedanji časovni normativi za obravnavo nevrološko obolelega otroka ne omogočajo celostne in strokovne obravnave. (Skrajšano na 2000 znakov)
Descriptors		NERVOUS SYSTEM DISEASES HOSPITALIZATION CHILD OUTPATIENT CLINICS, HOSPITAL