Author/Editor		Ravnik, Igor M
Title		Celostno obravnavanje otrok in mladostnikov z epilepsijo v Sloveniji
Translated title		Comprehensive care for children and adolescents with epilepsy in Slovenia
Type		članek
Source		Zdrav Vars
Vol. and No.		Letnik 40, št. 1-2
Publication year		2001
Volume		str. 27-31
Language		slo
Abstract		Past developments of epilepsy services for children and adolescents in Slovenia are briefly summarized. In parallel to the endeavours to set up a multidisciplinary team needed to address the problems of the most severely affected patients with epilepsy, various forms of assistance for psychological and social problems of life with epilepsy have been introduced mostly as pilot projects supported by non-governmental funds. Epileptology, or rather comprehensive care for people with epilespy, is a demanding field, due to the complex nature of the disorder necessitating well coordinated inputs of several professional domaines: clinical neurology, child and adult: neurophysiology: neuroradiology: neuropsychology: nuclear medicine, psychiatry, clinical psychology, neurosurgery, social work. To make it function, high degree of trans-disciplinary co-operation and institutional support are needed. Definite lag or lack of managerial support to professional plans had led to stagnation of care for the most severe patients in Slovenia. Non-governmental projects have enabled professionals to gather useful experience and develop novel ways to address psychological and social problems that could not be implemented in health institutions. In the authors opinion, favourable factors that now exist in the country (experienced professionals in fragmented institutions, political support to healthpromotion) and internationally (recognition of epilepsy as an important public health issue, aims of the Global Compaign against Epilepsy 2001-2004) should be made good use of in order to develop comprehensive level of epilepsy care-medical, social, psychological, re/habilitation oriented-in Slovenia.
Summary		Avtor podaja kratek pregled razvoja varstva otrok in mladostnikov z epilepsijo v slovenskih javnozdravstvenih ustanovah ter oblik pomoči za socialne in psihološke težave bolnih in njihovih družin, ki so jih vzporedno s prizadevanji za razvoj večpanožne enote za diagnostiko in zdravljenje otrok in mladostnikov z najtežjimi epilepsijami preizkusili/razvili predvsem v projektih nevladnih organizacij. Epileptologija ali "celostno večpanožno obravnavanje oseb z epilepsijo" je zaradi kompleksnosti povezav številnih soudeleženih strok (klinična nevrologija in otroška nevrologija, nevrofiziologija, nevroradiologija, nevropsihologija, nuklearna medicina, psihiatrija, nevrokirurgija, klinična psihologija in socialno delo) zahtevno strokovno področje, ki terja visoko stopnjo transdisciplinarnega povezovanja in institucionalno podporo, da lahko zaživi v učinkoviti praksi. Zaostajanje strokovnega in poslovnega menedžmenta za potrebami stroke je v polpreteklem "tranzicijskem" obdobju botrovalo stagnaciji strokovnega razvoja na področju medicinskega obravnavanja oseb z najtežjimi epilepsijami v Sloveniji. V promocijo duševnega zdravja in v preprečevanje socialnih in psiholoških problemov usmerjeni projekti, ki so jih pilotno preizkušali v okviru nevladnih organizacij, niso našli mesta v redni dejavnosti kliničnih ustanov. Zaradi vrste ugodnih dejavnikov v domovini (obstoječe znanje in izkušnje strokovnjakov v sicer nepovezanih enotah kliničnega centra, strokovno-politična podpora načelu promocije zdravja) in v mednarodnem prostoru (Svetovna akcija proti epilepsiji 1997-2004) se po avtorjevem mnenju ustvarjeni pogoji, da se v naslednjih letih tudi v Sloveniji zagotovi bolj kakovostno celostno medicinsko, socialno in psihološko varstvo ter rehabilitacija oseb z epilepsijo.
Descriptors		EPILEPSY CHILD ADOLESCENCE PATIENT CARE TEAM HEALTH PROMOTION HEALTH EDUCATION